Roberta Lombardi and Infinite Strength
Roberta Lombardi wanted to do something for the Connecticut moms and kids with breast cancer, but that *something* quickly morphed into a nonprofit effort to help break through barriers in the lives of moms with MBC. Laser focused on single moms with kids under 19 living at home and financial need, Roberta took her nonprofit (she calls it her fourth child) nationwide in mid-2023 and is already serving women in 27 states. While providing 6 months of financial support to approved applicants remains the core of Infinite Strength, Roberta has added to the support through one-day local (Connecticut) mom-and-kid retreats, in-person and online panels with some of the best experts in cancer care, a 2024 MBC conference, and a groundbreaking effort to change the picture through the Connecticut Coalition of Oncologists. This is a woman who does not sit still and we are so lucky to have her as an ally for people living with MBC. This episode may inspire *you* to get out there and do something!
Living in the Public Eye with MBC: An Interview with Kelly Crump
Anne Woodward sits down with a special guest to discuss the in’s and outs of having MBC while living in the public eye. Get ready folks, pull up a chair you are not going to want to miss hearing from Kelly Crump, the first ever sports illustrated swimsuit model photographed while posing on a picturesque beach in a gorgeous swimsuit with a mastectomy scar for all the world to see. In this incredible interview Kelly explains how she embraced social media to live out loud and in doing so harnessed all the attention to be an inspiration and help her 30,000 + followers.
The Rising Rates of BC & MBC in Young Women, Including Pregnancy & Post-Partum Diagnoses
If you don't hear much about the rising rates of all stages of breast cancer, including MBC, in young women, you're not alone. De novo MBC rates (when Stage 4 MBC is found at the first diagnosis) are rising "exponentially", and fastest among women between the ages of 25 and 39, but not in older women. These trends are alarming to researchers. Perhaps most shocking of all: half of young women diagnosed with breast cancer under 45 have a postpartum diagnosis, defined as being within 10 years from their youngest child's birth, and that is something that rarely gets covered or explained. We'll explore it all in this episode, including the possible causes, recommendations for testing and even contraception for young women, and the research and clinical leaders working to make this a top priority in the BC & MBC space. It's difficult to consider, and dense, we know. But so important and important to share with all the young women in our lives. Not to scare them, but to inform and empower them.
Living Alone with MBC
Living with metastatic breast cancer is hard enough, but for those who are single or do not have a primary caregiver, living alone with MBC can be especially challenging. With some extra planning and working out who can support you, however, it is possible to continue to live alone well even when you have MBC. In this episode, we speak with four amazing ladies from the US & Canada, who generously share their experiences, feelings, and plans for living alone while navigating MBC. We then discuss some helpful resources for finding social & emotional support, legal & financial resources, and coordinating care. Finally, we end by sharing Lesley Kailani Glenn’s story of deciding to leave a thirty year marriage while diagnosed with MBC. Join us for this real but hopeful discussion! *Note: individuals in this episode share their thoughts on medical aid in dying as one part of this rich conversation.
Newly Diagnosed with MBC: Tests, Terms, & Tips with Dr. Rebecca Shatsky
Being diagnosed with MBC can feel like you’ve been dropped into a dangerous and alien landscape, one whose inhabitants speak a new and confusing language. Numb and bewildered, you face a mountain of medical decisions—each with seemingly high stakes. The last in Our MBC Life’s 3-part series for people newly diagnosed with MBC, this episode's interview with Dr. Rebecca Shatsky, interspersed with experienced-patient voices, sheds light on cancer types, tests, and treatment—and empowers listeners to navigate this challenging new terrain with understanding, knowledge, and confidence.
Newly Diagnosed & Trailblazing: An Interview with Michelle Anderson-Benjamin
In this episode, Our MBC Life sits down with patient and advocate Michelle Anderson-Benjamin, founder of The Fearless Warrior Project. During the pandemic, Michelle was diagnosed with early-stage breast cancer and then with metastatic breast cancer shortly after she completed initial treatment. An experienced healthcare professional, a mom of two kids, and a wife who poured all her energy into others, Michelle says the diagnosis of MBC put a "battery in her back" to refocus attention on herself. This candid conversation has a lot to offer those newly diagnosed with MBC, and will inspire all of us.
Newly Diagnosed with MBC: Keeping Your Balance on the Emotional Rollercoaster
Hearing the words “you have metastatic breast cancer” is devastating. Whether your diagnosis comes de novo or months, years, or even decades after treatment for early-stage breast cancer, there is no way to prepare for the terror, anger, despair, and sense of freefall that follows. You’ll hear from oncology social worker Lisa Nelson and a candid group of patients on the challenges of processing the diagnosis.
MBC Advocacy: Finding Purpose in Adversity
After a Stage IV Metastatic Breast Cancer (MBC) diagnosis, patients and the people around them are often left reeling and looking around to figure out how to make some sort of meaning from the trauma. The guests and representatives from LBBC and METAvivor on this episode share how finding purpose in the midst of adversity has helped them to truly LIVE with MBC. Don’t forget to listen all the way to the end as guest producer, Abigail Johnston, has some specific calls to action to share!
LBBC - Silent Voices No Longer
This season, we are bringing back our Trailblazer series. Our first trailblazer is Living Beyond Breast Cancer (LBBC), a national non-profit that has become synonymous with the word community. That’s because LBBC’s annual Conference on MBC is one of the largest gatherings for women and men living with MBC. In this episode we will speak with Jean Sachs, CEO of LBBC, and sprinkled throughout this episode are your voices, voices of patients sharing their LBBC experience.
Meditation, Mindfulness, and MBC: Finding Your Inner Calm
Can mindfulness and meditation help many of us living with MBC tame anxiety, improve emotional balance, and experience more joy? Expert guests and our patient panel share how this ancient practice can make a daily difference. Bonus: our podcast includes a special guided meditation created with MBC patients in mind.
Laughter as Medicine
Is laughter good medicine? These breast cancer survivors/thrivers say: Yes!
Systemic Racism and MBC in Clinical Trials
Jumping hurdles to get the treatments you want is the reality for people living with MBC. Add systemic racism into the healthcare mix and it’s clear that more needs to happen, and soon, to create equity and greater diversity in one of the most important tools in the MBC toolbox: clinical trials. In this episode, we check in with Stephanie Walker, who led the BECOME project and spearheads the Black Wo(Men) Speak Symposium, patient advocate and clinical trial participant Rev. Dr. Tawana Davis, and Patient Navigator Valarie Worthy. How does systemic racism affect what Black patients learn about MBC clinical trials? And how can those who need it most break down barriers to the best care?
RTAC: FES/Cerianna Screening for Estrogen Positive MBC
There’s a FDA- approved diagnostic imaging agent developed to comprehensively evaluate estrogen receptor-positive (ER+) lesions in recurrent or metastatic breast cancer as an adjunct to biopsy. By creating a “whole-body” picture of ER+ lesions, Cerianna may be a helpful diagnostic tool in helping oncologists better determine the most appropriate course of treatment. Learn more in this episode.
Caregivers: We Can’t Do This Without You!
Celebrate OMBCL’s 100th episode and National Family Caregiver Month by listening to our candid conversations with three committed and courageous caregivers.
We Remember
We Remember honors all who died from metastatic breast cancer over the past year—parents, children, spouses and partners. In this episode, the MBC community gives voice to both the grief and the love that endures after each death.
MBC101: The HER2-Low Show
The DESTINY-Breast04 trial at ASCO 2022 introduced many people to the term “HER2-low.” But how do you know if you’re HER2-low? In this episode, with the help a breast pathologist and a clinical oncologist we dive into this subtype and what it means to us.
The Legacy of Lisa Laudico
Lisa Laudico, who created and spearheaded the Our MBC Life podcast series, died on August 6, 2022 from MBC. In this episode, Lisa’s friends, family, and colleagues remember her amazing life and celebrate the many ways she fostered connection, resilience, and hope throughout the MBC community.
Psilocybin-assisted Therapy: One Patient vs. the DEA
Welcome to the third and final episode in our series on the potential of psilocybin-assisted therapy to relieve the existential distress of, and help us live as well as possible with, metastatic breast cancer.
In this episode, we speak with two women taking action to increase legal access to psilocybin-assisted therapy in the United States. The first is a patient living with MBC who, along with her doctor, have brought a lawsuit against the Drug Enforcement Agency which is denying her access to psilocybin in the palliative care setting and under existing Right to Try laws for promising investigational medications for the terminally ill. The patient petitioner, Erinn Baldeschwiler, tells us why she joined the lawsuit, what she hopes to gain from psilocybin-assisted therapy, and what it’s been like to deal with all the legal proceedings on top of a progressing MBC diagnosis.
Our second interview in this episode is with the attorney who is leading the legal case to open access to psilocybin under Right to Try legislation, Kathryn Tucker of the Emerge Law Group. Kathryn explains why psilocybin should be immediately available to patients suffering from distress, anxiety, depression under FDA rules and state and federal Right to Try laws. But the DEA is continuing to block access and hold psilocybin on Schedule 1 of the Controlled Substance Act.
It’s confusing, but we explain it all here. Lastly, see the Episode Notes for a current petition to the DEA to step out of the way and grant access to psilocybin for anyone with a terminal illness.
This series has been led by series producer, Dr. Paula Jayne with assistance from co-host Lynda Weatherby, and senior producer and host Lisa Laudico.
Thanks for listening!
Psilocybin-assisted Therapy: Patient Experiences
Welcome to the second episode in our series on the potential of psilocybin-assisted therapy to help us live as well as possible with metastatic breast cancer.
In this episode, we talk to two women with breast cancer who had legal access to psilocybin-assisted therapy. Journalist and writer Erica Rex participated in a clinical trial at Johns Hopkins after being diagnosed with early-stage breast cancer. Maari Singfield, a young Canadian woman living with MBC, gained access through an exemption to Section 56(1) of the Canadian Controlled Drugs and Substances Act, a process facilitated by the organization, TheraPsil.
Both women shared with us the process that they went through to gain legal access to psilocybin-assisted therapy, what the treatment was actually like for them, and what, if anything, changed in their lives afterward.
