Facing Fears & Living Fiercely: How a Death Doula Can Help
Join us for a candid & heartfelt discussion with certified death doula and fellow MBCer Deltra James as she shares how death doulas support us in facing mortality with less fear and more intention. We also chat about her six week virtual course, “The Good Grim: Exploring end of life, facing fears, and living fiercely”, offered free through Project Life for those living with MBC. We invite you to listen to this life-filled conversation.
METAvivor: A Driving Force in Research, Advocacy, & Hope
In this episode of Our MBC Life, we sit down with Dr. Kelly Shanahan, the president of METAvivor, a U.S. nonprofit solely dedicated to funding research for metastatic breast cancer (MBC) while also supporting patients through advocacy and community. Our guest shares METAvivor’s mission, their biggest milestones, and how their work is driving critical research that aims to extend lives and improve quality of life for those living with MBC.
We dive into how METAvivor prioritizes research funding, the importance of patient involvement in advocacy initiatives, and the Stage IV Stampede—a powerful advocacy event raising awareness and amplifying the voices of the MBC community.
Tune in to hear how METAvivor is shaping the future of MBC advocacy and how you can get involved to make an impact.
MBC Advocacy: Finding Purpose in Adversity
After a Stage IV Metastatic Breast Cancer (MBC) diagnosis, patients and the people around them are often left reeling and looking around to figure out how to make some sort of meaning from the trauma. The guests and representatives from LBBC and METAvivor on this episode share how finding purpose in the midst of adversity has helped them to truly LIVE with MBC. Don’t forget to listen all the way to the end as guest producer, Abigail Johnston, has some specific calls to action to share!
LBBC - Silent Voices No Longer
This season, we are bringing back our Trailblazer series. Our first trailblazer is Living Beyond Breast Cancer (LBBC), a national non-profit that has become synonymous with the word community. That’s because LBBC’s annual Conference on MBC is one of the largest gatherings for women and men living with MBC. In this episode we will speak with Jean Sachs, CEO of LBBC, and sprinkled throughout this episode are your voices, voices of patients sharing their LBBC experience.
Advocacy from a Legislator’s Perspective - Rep. Debbie Wasserman Shultz
Rep. Debbie Wasserman Schultz shares with us the power of the patient advocate voice and the impact of personal stories. She talks about how her own experience with breast cancer has shaped her approach to issues related to healthcare. We are so thrilled to get a legislator’s perspective as we explore Our MBC Life.
Clinical Trials: The Patient Perspective Part 2
We know the challenges of trials and the barriers to recruitment as outlined in part 1. Now in Part 2 we explore solutions with patient advocates and medical professionals who are working to find ways forward. Clinical Trials from a Patient Perspective Part II. Let’s solve this.